Monday, October 20, 2014

Me, A Troll?

Today I was accused of being a troll. Really not a big deal, I've been called far worse in far more polite forums. What bothered be about this was the context of said name calling. It was a reply log to an article about something exceptionally close to my heart. A 3 year old boy with autism who was subjected to a 5 hours ride from his school to his home; a trip that would usually take his parents 20 minutes. A dear friend of mine posted his own scathing article; well written, composed (considering the subject matter, he is al so a parent of a son with autism.) Along with the usual platitudes, "Oh my GOD.....That's horrific......if that was my child," I could easily pin point those with children with Autism and special needs comments.

Then, there were the others

You see, I have been spoiled. I am in a private group for parents of children with Autism. I have several face book and twitter friends and followers who just get it. I have cut out all those that are cruel, or refuse to learn or understand.

I have been reading back over my last few blog entries and am quite aware what a lyrical but melancholy sense I have been weaving.  I've been so introverted and selfish, I forgot about the rest of you.  The parents of the 1:88, the aunts, uncles, cousins and siblings of that 1:88.  If you entered my blog you no doubt would have stopped reading four sentences in and run screaming for the nearest Developmental Pediatrician. Shit, I would have.

I have a dear online friend (yes, most of my special need friends are online, and on the phone) who is dealing (I refuse to say struggling) with three special needs babies, aged between 1 and almost 5.  Today I started wondering what I would have wanted to hear from a been there done that Mum; three kids with needs, aged between 1 and 5.

* This too shall pass; Hannah is entering Kindergarden this Fall, her IEP is this week.  She is still a sensory mess, but compared to the 15 month old I literally held out like a sensory offering to Babies Can't Wait, she is eager, willing and racing towards Kindy.

*