I have spent so much time and well forged energy allowing my children a space to have a safe space to have their needs, typical or otherwise center stage. In fact none of them are really aware I blog about them; the good, the bad and the ever so often ugly. I have not I realize shared my story in the realm of invisible disabilities. It actually started at birth. I was born with a congenial cataract. It was no one's fault, in fact when I realize what could have developed a single cataract seems fabulous. Yes, I has a cloudy, gammy eye for a few years. A few surgeries later, ok, four, it's as good as it gets. Perhaps another surgery on the horizon, but nothing major. Just can't be drafted into the army.....dammit!!
I am fairly sure I was an undiagnosed ADHD child/student. I suspect those who know me as a child ,or teen or a relative are chuckling knowingly right about now. Of course meds were minimal to non existent where I was raised. Still, I found a way through a college education. I emigrated, married, had my three special needs kids; they and their needs consumed me. Well, they had to, I was their only voice for so long. I was diagnosed with low B12 and I am receiving B12 shots.
Which brings me to today. The last 8 months, maybe even a year I have been plagued with these bizarre seizure like episodes. To the outsider, they appear mild. I glaze over and within' minutes I simply have to lay down. I know by the time I lay down I will fall asleep. This is not optional, there is now way to keep me awake. I sleep between 45 minutes and two hours. It's a dead sleep, no dreams, no outside noise penetrates.
My GP suggested I just avoid the foods that triggers these episodes. However, that is easier said than done. I don't know a trigger until I collapse. The only beneficial help has been an all vegetarian dirt. Once I introduce fats, carbs and especially meat protein, it's Goodnight! Tonight, I ate fried chicken. I had avoided meat for weeks. I was in a bind and had to eat something. Made it home and within thirty minutes I seized and was in the deepest sleep you could imagine. I am becoming quite ticked that my GP won't listen to me. "Avoiding" trigger foods is NOT my idea of finding the most important answer....why?
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